by Lisa Miller-Ormonde Ritter on Thursday, March 29, 2012 at 11:35am ·
 
"I will never leave you nor forsake you." Heb. 13:5
On hard days like today, I can find myself wanting to throw myself a pity party! Yesterday, I fought with CCS (California Children's Services) because they are trying to deny Emma all of her feeding tube supplies. Their reason...because she has reached the 10-25% for her height/weight! What they fail to understand is that the feeding supplies are the ONLY reason she is growing!!!! Plus if you just look at her weight...she is only in the 3-5%!! So...after calling all her doctors, children's home care and healthnet...I have to just wait for people to do their "job" and try to work it out...UGH!!!
Today, Emma woke up sick. She is coughing a ton, very grumpy and to top it off, she has a fever. It's ONE day from spring break!! The timing just couldn't be any better! :( Then I went to flush her mediport...and low and behold...it WON'T FLUSH!!! Something is wrong with it and it's not working...this is how Emma gets all her IV meds, so without the port, she has to do regualr IV's, which on a CF patient are pointless. So, if we can't get it to work...then we will have to do yet another surgery to replace it!!
In my devotional this morning it said "Before your burden overcomes you, trust God to put His arms underneath you." Underneath me...I had to look this up...dig a little deeper...God want to hold me up durning my times of burden. I looked up "To hold up" in my dictionary and to my shock it says "to continue to live through hardship or adversity". What a picture...God will hold be up during my darkest hours, my times of pressure and burden and through that I can continue to live through the hardship and adversity with God holding me!! My devotion also said "We can trust our faithful God to be there in all your stuggles. 'When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you.' Isa. 43:2"
The hospital just called and they are going to wait to see how Emma is doing tomorrow...if she isn't feeling better than we will have to look at the possiblitly of admitting her during spring break! :( As far as her port...they are calling in a nurse to come look at it and put some medicine in it to try and break up whatever is blocking it!!
Today, as we each face our hardships, our trials, our persecutions, our struggles, we need to remember that "Before your burden overcomes you, trust God to put His arms underneath you"!!
I don't know about you...but it sure enourages me to put a stop to the pity party I was thinking about having! haha Have a great day my friends!!
Love,
Lisa