A Mother's Journey-May 30, 2012

A Mother's Journey-Day 9

by Lisa Miller-Ormonde Ritter on Wednesday, May 30, 2012 at 8:24pm ·

God grant me the strength to handle life's challenges, In order to overcome these life long obstacles.
God grant me the courage to stand up for what I believe in, In order to express my true opinions without fear.
God grant me the answers to my questions, In order to find some understanding.
God grant me the piece of mind I so desperately need, In order to remain sane in this inside universe.
God grant me the patience I thought I once had, In order to with stand everything thrown to me.
God grant me the guidance to be able to succeed, In order to be whatever it is I want to be. God I need you now and forever, please help me .

The poem/prayer above was sent to me from a friend and fellow CF Mommy! It really meant a lot to me, so I had to share it with you guys! Today was better then yesterday!
Today, Emma's doctor informed me that her echocardiogram came back normal!!! PRAISE GOD!!! The final word is...Emma turning blue around her mouth is NORMAL!?!?!?! hahahaha Even though it isn't normal to turn blue around your mouth, for Emma, it is part of her vascular make-up. As far as her lungs, she started a new medication to help loosen the mucus. We will re-x-ray her lungs on Thursday to see if it is making any difference. If there is no change, then her doctor will scope her lungs to try to break the mucus plug free. She will be having surgery on Friday to replace her mediport. The reason this is being done is Emma has had her port for four years on July 2, since it has been in for so long there is the concern that her body may have formed around the catheter. If this happens, it can get cause it to get stuck and lead to a more invasive surgery, which we don't want. Emma's doctor said, since her surgeon is able to fit her in this week, then we should be able to go home by Monday!! YAY!!!!!!!!!!!!!!!!!!
Today Emma went "camping"!! The Paul Newman Foundation came and set up a "camp site". They had a camp fire, made of lights, the did arts and crafts, the played games and sang songs. Emma had so much fun. She also played some basketball with her nurse, "Canole", which was adorable to watch!!!
I will be so happy to get home, but I have to be honest...I will be sad to not see some of the amazing staff around her. I can't brag enough about how amazing they are. It is so comforting to be around people that not only take care of my daughter but love, and truly care about her!! The staff has become family and I can't thank God enough for giving us a place to feel so at home. With that being said...I will miss them...but I will be SOOOOO HAPPY TO SEE MY FAMILY!!!! ONLY 5 more sleeps!!!!!!!!!!!! :)